Pool of Siloam: Spina Bifida Clinic Update

Rowan met with all of his specialists Thursday and received a great report. The neurosurgeon was very happy with his progress and measured his head to exactly 50% which is great. At 6 months he will have an MRI of his head and back to help us get a better look at these structures. The worst part will be going under general anesthesia. The urologist didn't see any need to catheterize Rowan at this time which is a relief to us. Both orthopedics and rehab were very happy to see him kicking his legs. His hips appeared very stable and he had full range of motion in his legs. They took a pretty close look at all the muscle movements and were extremely pleased. The rehab doctor said "His movement is as good as I've seen in any child with this condition" which of course we were incredibly happy to hear. So overall a great appointment, we'll see them all again in June.

We recently registered for the Spina Bifida Walk-N-Roll fundraiser walk in Denver May 5. Grammy Buck and Aunt Ashley will be visiting that weekend so we will all be walking in Wash Park that morning. We welcome donations to the event through Stephanie's fundraising page. Our goal is to raise $1000! We know there are many of you who read this blog and ask that if you are able to donate $25 or $50 we would really appreciate it. While we are incredibly thankful for Rowan and think he is amazing we certainly don't wish this disease on any child and hope to be a part of the solution to reducing the incidence of the disease and improving the function of children with the disease.

https://www.firstgiving.com/fundraiser/StephanieThomas/2013

Thank you all for your continued prayers and support. Each day is a blessing with Rowan and we feel proud to be his parents.

Blessings,

Kyle & Stephanie