Spina Bifida Clinic Update

Rowan met with all of his specialists Thursday and received a great report.  The neurosurgeon was very happy with his progress and measured his head to exactly 50% which is great. At 6 months he will have an MRI of his head and back to help us get a better look at these structures. The worst part will be going under general anesthesia. The urologist didn't see any need to catheterize Rowan at this time which is a relief to us. Both orthopedics and rehab were very happy to see him kicking his legs.  His hips appeared very stable and he had full range of motion in his legs. They took a pretty close look at all the muscle movements and were extremely pleased.  The rehab doctor said "His movement is as good as I've seen in any child with this condition" which of course we were incredibly happy to hear. So overall a great appointment, we'll see them all again in June.

We recently registered for the Spina Bifida Walk-N-Roll fundraiser walk in Denver May 5. Grammy Buck and Aunt Ashley will be visiting that weekend so we will all be walking in Wash Park that morning. We welcome donations to the event through Stephanie's fundraising page. Our goal is to raise $1000! We know there are many of you who read this blog and ask that if you are able to donate $25 or $50 we would really appreciate it. While we are incredibly thankful for Rowan and think he is amazing we certainly don't wish this disease on any child and hope to be a part of the solution to reducing the incidence of the disease and improving the function of children with the disease.

https://www.firstgiving.com/fundraiser/StephanieThomas/2013

Thank you all for your continued prayers and support. Each day is a blessing with Rowan and we feel proud to be his parents. 

Blessings,

Kyle & Stephanie

Hello Friend! Would you please donate to the Walk - N - Roll?

Daddy Reading Time

What a desirable pair!

Rowan's Dedication

Time is flying by and little Rowan isn't so little anymore.  He is now over three months old and is a bit chunky at 15 lbs.  I measured him last night and he has grown 5 inches since birth and weeks ago doubled his birth weight.  We visit the Spina Bifida clinic next week and Rowan will have a renal ultrasound to look at his kidney function.  There isn't really anything to update concerning his health. He continues to do very well and is an extremely happy boy.  He has settled into a fairly predictable routine and is sleeping well.  The most fun time of the day is morning when he is especially happy and smiles a bunch.

Two weeks ago we traveled to Indiana to visit family and have Rowan dedicated at Sonrise.

"For this boy I prayed, and the LORD has given me my petition which I asked of Him. "So I have also dedicated him to the LORD; as long as he lives he is dedicated to the LORD." And he worshiped the LORD there. 1 Samuel 1:27-28

We felt it would be very meaningful to have Rowan dedicated at the church Grandpa Buck pastored for 25 years.  It was a great celebration and time with family.  We had Casa's for lunch because we just can't find an equivalent in Colorado. 

The Milk Monster is 3 Months Old!

Dedication with Scott

Second Cousins or something?

Buck Family

Fosnough Family

Thomas Family

On our way to Indiana

We all three are sitting in the Denver airport waiting to board a flight to Indy. It's our first experience flying so we're hoping for the best. I always get really frustrated when there's a baby next to me on a flight. I guess perspectives change with time. Now we'll be the ones making rows 12-16 really excited for their flight.

We will be spending some time in Indy with the Thomas family and attending a funeral for Kyle's Grandpa Thomas Saturday before heading to Fort Wayne.

We know many friends and family from Fort Wayne and Sonrise have prayed for us and followed our story. Rowan will be dedicated at the 11 am service at Sonrise Sunday so we would love for you to meet him Sunday morning. Prayers for health for Rowan and some sleep for us all with the disrupted schedule.