Rowan's having a shunt revision

Friends & Family, Rowan has been having occasional episodes of feeling bad for the last few months. He will have headaches and act very tired and typically after a nap he feels better. We've been suspecting that his shunt hasn't been working properly for a few months. After a few more prolonged episodes we asked the neurosurgeon to schedule an MRI. He had the MRI this morning and it showed enlarged ventricles so a shunt revision is necessary. He will be having surgery tonight at 8pm. We ask you to say a prayer for him and the whole family. Stephanie will spend the night at home with Huxton and I'll stay overnight with Rowan at the hospital. 

Rowan might be wearing lots of hats to hide his bad haircut after surgery.

Huxton says "get well brother"

18 months

Just a few weeks ago we celebrated 18 months with Rowan by going to Steph's favorite new deli, Olive & Finch. I suppose Rowan seemed to like the food as well so it wasn't such a bad deal for him. One of the biggest milestones for Rowan near the 18 month mark has been crawling. Just a few days before Memorial Day he was sitting on the ground and spotted an errant raisin leftover from lunch and decided he wanted to track it down. He army-crawled his way over and victoriously ate the raisin. And as easy as that he was crawling. It's been great for him to be able to move, explore, and make messes like all kids are supposed to. By far his favorite activities are opening drawers and cabinets and pulling on cords. We've been a little lazy with baby-proofing with Rowan being relatively immobile but things have become a little more involved in the past month.

The summer has brought a flurry of social outings between the pool, Children's museum, Zoo and play group. Living in a small apartment means you need to go outside a lot to keep sane. Steph and Rowan had a great trip back to Indiana in June and we all were in Durango over Memorial Day watching dad race bikes.

Rowan's personality is starting to shine through more every day. He continues to be an incredibly joyous boy but also knows how to throw a fit. You certainly don't have to teach a kid how to protest eating vegetables. Over the past few months he has learned that he is entitled to an opinion. His tastes in food have changed from "I'll eat anything" to "I'll eat anything as long as its bread or cheese or ice cream."

In the past week Rowan had his spina bifida clinic and his 18 month checkup. His hip dysplasia continues to improve and he will wear his brace at night as a precaution for the next 6 months. Nothing else out of the ordinary in terms of his health. We are having a new set of AFO braces made as he is growing out of his first pair after 4 months. Now that Rowan is moving around so much more he has thinned out a bit. He actually didn't gain any weight between 12 months and 18 months so per the pediatrician's orders he's eating a little extra.

In the past few weeks we transitioned to in-home physical and speech therapy. It is very convenient to have the therapists come to our place, especially with a new baby coming soon. So far the therapists have been great and are seeing him almost twice a week.

This weekend marks 35 weeks in Steph's pregnancy so most likely the next time we publish an update it will be to introduce Rowan's newest sibling! This will be a big adjustment for Rowan. He is very accustomed to having mom's full attention but we know a sibling close in age will be great for both Rowan and baby T.

God Bless,

Kyle, Stephanie, Rowan & Baby T

Hello Everyone, I love the Zoo

What is going on with Mommy's belly?

My Rocket Rider from the physical therapist

OOOOOOOHHHHH, My new favorite face

Walk 'N Roll 2014

Last weekend our family participated in the Spina Bifida Walk 'N Roll in Wash Park. We made the 2 mile walk around the park and talked to several families that Steph has connected with through her moms groups. It was a great chance to see some other families while raising money for the Colorado chapter of the Spina Bifida Association. Thanks to all who contributed!

The last month has brought about quite a few changes in Mr. Rowan. After months and months of attempting to teach him sign language finally something clicked so anytime Rowan sees food he starts signing "more" and "eat." He still isn't able to crawl forward but has figured out how a combination of rolling, backwards crawling, and moving side to side can pretty much get him where he wants to go. His favorite activity is opening drawers and emptying them. Pretty soon we are going to need to invest in cabinet door locks.

Rowan has been working more on steps and has special braces to help support his legs during walking. He is able to stand for much longer and especially enjoys playing at the playground. Next month we will go to spina bifida clinic to have another look at his hips and bladder function. We continue to have physical therapy every few weeks and while at times the progress seems a bit slow he is definitely gaining more strength and moving around more. It's about 3 months until Rowan is a big brother which is quite a scary thought. However, we are very excited two have two little ones close in age to be good buddies.

Blessings,
Kyle, Steph & Rowan

Rowan walked across the Finish to a host of cheers

Play time at playground

First Family Hike of the season

I love Easter Eggs!

Braces, Moving Day, Big Brother!

In the fall we decided it was a good time to think about expanding our family. We both wanted to have a brother or sister for Rowan so why not just knock it out while the baby phase hadn't worn off yet. In November Steph showed me a stick with a plus sign on it, well that didn't take long. So, come August 3rd we will be expecting a new member to our family. It is certainly exciting and brings back memories from when we found out about Rowan which wasn't really all that long ago. With a growing family comes needs for more space so we decided to list our house and well that didn't take long either, two days to be exact. 

We are currently writing this message from our temporary apartment while we build a new house in our neighborhood. We are actually only moving about a mile from where our old house was, just a little ways west in the same neighborhood. Realizing that Rowan has some specific needs we felt that building would offer us the best option for providing him independence and space. Rowan will have his room on the main floor with an accessible bathroom and a ramp to the garage in the back. We are roughly doubling our lot size so there will be a nice sized back yard for the kids to play in (kids! crazy) and a nice park just two blocks away. We hope to be in the new house by September.

Rowan has been amazing us lately with how much he has grown. He seems so tall when he is standing. For such a long time he wouldn't stand up so I think it is just the appearance now when we see him upright that throws us off. He still isn't able to stand unassisted but is growing stronger every day. A few weeks ago Rowan received his first set of AFO braces which really help to stabilize his ankles and help him stand. We work on standing every day and he is making progress.

In January we had spina bifida clinic where we found out that his hip dysplasia had drastically improved. He is still wearing the brace at night just to be safe but his last x-ray looked perfectly normal. He continues to work with PT and has a walker that he thinks is more of a fun toy than a tool to help him move around. His kidneys didn't show any reflux and he hasn't had an urinary tract infections so he was able to drop his antibiotic and so far so good there. He will be checked again at 18 months and for the next few years will just go every 6 months. Overall his health is great, we just keep working on physical strength. As he gets bigger and as Steph's belly gets bigger its becoming a little more challenging to work on his standing.

Please pray for Rowan to continue to develop strength and to be motivated to work on exercises. Pray for our new Baby T and Steph as she adjusts to pregnancy with a toddler. We had our 20 week ultrasound last week and the baby looks very healthy.

God Bless,

Kyle, Stephanie, Rowan & Baby T #2

First sledding day, Loved it!

Another Thomas is on its way

I'm pretty excited to be a big brother!

Hey Check out my new braces!